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Treatment for genetic disease too expensive for average Aussie
08/03/2018 12:39 am
/ 12:25
CEO and founder of Spinal Muscular Atrophy (SMA) Australia Julie Cini, is petitioning the government to put a potentially lifesaving treatment on the Pharmaceutical Benefits Scheme (PBS) after losing both of her daughters to the rare genetic disease in the space of two years.
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