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Family’s undeniable bond the lifeline from rare, debilitating disease

Simon Beaumont

The love between Kelly Rinaldi-Bull and her daughter Taiyisa is clear to anyone who meets them, but there is an unfortunate side to their bond.

Taiyisa has a rang of conditions including Mays Thurner syndrome syndrome among others; there are very little experts who can treat the disease outside Germany.

Kelly Rinaldi Bull told Gary Adshead on 6PR Mornings it has been a long, tough journey to get her daughter’s diagnosis, and now the only treatment available to them is on the other side of the world.

“We’ve weighed up our options, and this is the only option we’ve got to give her a life that’s going to be worth living,” Ms Rinaldi Bull said.

Press PLAY to hear more about Taiyisa Rinaldi-Bull’s life journey

Images: Instagram

Simon Beaumont
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